ABC News aired a short segment on Boxing as a way to combat the effects of PD. I didn't see the program but read the transcript. I must say that if they have had the success claimed, where do I sign up ? Don't know how I could start a similar group here but have shot an e mail off to the President of YPIndiana and hope to hear back from him.
If you are confused by one of my recent posts it will help if you first read the post on my wife's blog where she notes confessions and fears she has regarding my PD. Her blog is linked here and is titled Life with Shaky....
I recently bought a little S-10 pick up truck, lowered, which several people have been kind enough to point out is about 30 years too young for me. Toying with the idea of painting it myself because I always wanted to paint my own ride and painting is one of the few things I have never tried when it comes to hot rodding. We'll see. Speaking of hot rodding, my son developed the same passion and is much better than I ever will be with trying anything and making it work. Afraid of nothing, an excellant mechanical mind, I am so proud of what he has done with his hot rods. Once I get the new truck finished and my old race car motor back together we are planning to park all four hot rods together and take a picture of our rides and us. When that happens, my photo will change on the blog....He even coined a slogan for the way we feel about cars...
"It's not what you buy, It's what you build" Pretty cool huh ?
I need to get back to story telling. I think next time I will post about how we came to have our youngest, little 15 month Rielly-Anne...
Later
Thursday, March 6, 2008
Tuesday, March 4, 2008
WHO IS THE VICTIM IN ALL THIS ANYWAY ?
If you read my previous post you know by now that I am not the victim, not anymore at least. So who is ?
Based on some recent posts by my sweet wife I am afraid she may be the victim in all this....she obviously has some guilt about me moving a little slower than she would like and other such things. She posted "Confessions of a wife whose husband has PD " or something like that on her blog "Life with Shaky" - go read it, I should probably read it again, take notes and then respond. But I'm too lazy and this way if I remember wrong I have an out so to speak :-)
Anyway, WIFE, I say to you:
* Sorry for the times when I frustrate you and if I move too slow at times. It's OK. I get frustrated too, as long as you know I am doing all I can, It's all good !
* You won't crack under pressure, you are strong, you are my rock and I trust you .
* Don't worry about money. Do all you can , plan for the worst, hope for the best and know that everything is in God's plan for us.
* PD IS NO BIG DEAL TO ANYONE EXCEPT PWP AND THEIR FAMILIES. If someone doesn't seem to think it's a big deal it is likely due to ignorance. Unlike PD, ignorance can be cured, STUPID is forever. Don't sweat the small stuff honey. Concentrate being happy today.
* Anyone who thinks having a child ( if you want to have one ) at any age, with any illness is STUPID, not ignorant. See above about no known cure for STUPID.
Our children , all three of them are gifts and cannot be mistakes by anyone of normal mental capacity.
* Why would you want to skip out on me, we just got started good :-)
* I know you sometimes must feel sorry for yourself, we all do some day or another. Please refer to my post on choosing to live while I can. Don't waste your time on sorry, lets figure out how to live like tomorrow may not come...
* Don't let our kids feel sorry either , let's teach them to LIVE
* We ARE perfectly happy- not " except for PD " BUT IN SPITE OF PD !!!
* No hard feelings on the surgery my honey, look where it got us ! A good trade in my book !
* If something happened to you, I would get help taking care of the kids, don't worry, LIVE. You can't change yesterday, tomorrow isn't promised so quit worrying.
* You want more kids ? Remember how we do that ? ( Couldn't help myself sorry , gotta have a little fun with you ! )
To give action to something I recently learned , if you don't know, let me tell you:
I love you to pieces, you make me very happy, you are a wonderful mother and I know when the time comes you will take good care to me. You are the best. You are the love to me life.
I know it's not easy to be married to a PWP and mostly I feel worse for you than me , but let's not be defeated. I refuse to wave the white flag. Now..............lets GET TO IT ! LIVING that is....
Based on some recent posts by my sweet wife I am afraid she may be the victim in all this....she obviously has some guilt about me moving a little slower than she would like and other such things. She posted "Confessions of a wife whose husband has PD " or something like that on her blog "Life with Shaky" - go read it, I should probably read it again, take notes and then respond. But I'm too lazy and this way if I remember wrong I have an out so to speak :-)
Anyway, WIFE, I say to you:
* Sorry for the times when I frustrate you and if I move too slow at times. It's OK. I get frustrated too, as long as you know I am doing all I can, It's all good !
* You won't crack under pressure, you are strong, you are my rock and I trust you .
* Don't worry about money. Do all you can , plan for the worst, hope for the best and know that everything is in God's plan for us.
* PD IS NO BIG DEAL TO ANYONE EXCEPT PWP AND THEIR FAMILIES. If someone doesn't seem to think it's a big deal it is likely due to ignorance. Unlike PD, ignorance can be cured, STUPID is forever. Don't sweat the small stuff honey. Concentrate being happy today.
* Anyone who thinks having a child ( if you want to have one ) at any age, with any illness is STUPID, not ignorant. See above about no known cure for STUPID.
Our children , all three of them are gifts and cannot be mistakes by anyone of normal mental capacity.
* Why would you want to skip out on me, we just got started good :-)
* I know you sometimes must feel sorry for yourself, we all do some day or another. Please refer to my post on choosing to live while I can. Don't waste your time on sorry, lets figure out how to live like tomorrow may not come...
* Don't let our kids feel sorry either , let's teach them to LIVE
* We ARE perfectly happy- not " except for PD " BUT IN SPITE OF PD !!!
* No hard feelings on the surgery my honey, look where it got us ! A good trade in my book !
* If something happened to you, I would get help taking care of the kids, don't worry, LIVE. You can't change yesterday, tomorrow isn't promised so quit worrying.
* You want more kids ? Remember how we do that ? ( Couldn't help myself sorry , gotta have a little fun with you ! )
To give action to something I recently learned , if you don't know, let me tell you:
I love you to pieces, you make me very happy, you are a wonderful mother and I know when the time comes you will take good care to me. You are the best. You are the love to me life.
I know it's not easy to be married to a PWP and mostly I feel worse for you than me , but let's not be defeated. I refuse to wave the white flag. Now..............lets GET TO IT ! LIVING that is....
THE WORLD DIDN'T STOP TURNING..........
A quick note about a new book I just started....The title is "Tuesday's with Morrie" and it's written by Mitch Albom who also wrote " The Five People You Meet in Heaven"
Once I finish the book I will write more about it but the very beginning struck a nerve....when any of us is told we have a chronic, devastating disease like PD or even a terminal disease like ALS ....one of the first hurdles we have to overcome is the realization that the world is not going to stop turning, life is going to go on as before with or without us and we can choose to live while we still can or we can throw the towel in and not live at all.
Recently I attended my second PD support group meeting and sort of turned a corner in respect to my thinking. Within the group there are many many people with PD who have lived with it for years. Although still working and living a somewhat normal life my mind had already resigned itself to defeat by PD.
More than a year after diagnosis I realized that although I am unable to live like I used to, unable to do some things I used to, I am still doing most things and I likely have a lot of living left to do.
We tend to forget how fragile and precious life is in the day to day rat race of life in general and we forget that it can all end in the blink of an eye for any of us for a whole host of reasons. So why feel defeated ? Why not live every day enjoying all of it we can ? That is the choice I have made and it has opened me up to a much happier existence, even with the shadow of PD lurking beneath the surface.
This new book promises to open my eyes even further as it deals with the business of dying so stay tuned, I expect to have a lot to say about it soon...
But now I must open a new post directed at caregivers/spouses.....
Once I finish the book I will write more about it but the very beginning struck a nerve....when any of us is told we have a chronic, devastating disease like PD or even a terminal disease like ALS ....one of the first hurdles we have to overcome is the realization that the world is not going to stop turning, life is going to go on as before with or without us and we can choose to live while we still can or we can throw the towel in and not live at all.
Recently I attended my second PD support group meeting and sort of turned a corner in respect to my thinking. Within the group there are many many people with PD who have lived with it for years. Although still working and living a somewhat normal life my mind had already resigned itself to defeat by PD.
More than a year after diagnosis I realized that although I am unable to live like I used to, unable to do some things I used to, I am still doing most things and I likely have a lot of living left to do.
We tend to forget how fragile and precious life is in the day to day rat race of life in general and we forget that it can all end in the blink of an eye for any of us for a whole host of reasons. So why feel defeated ? Why not live every day enjoying all of it we can ? That is the choice I have made and it has opened me up to a much happier existence, even with the shadow of PD lurking beneath the surface.
This new book promises to open my eyes even further as it deals with the business of dying so stay tuned, I expect to have a lot to say about it soon...
But now I must open a new post directed at caregivers/spouses.....
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